Friday, April 8, 2016

Some results

I didn't mean to leave anyone hanging...I know you've all been on the edges of your seats waiting for an update 😉

The shedding seems to have stopped almost entirely over the past several days. Praise the Lord. This is an ENORMOUS relief to this mama's worried heart.

We thought we'd have some results by Monday but I didn't hear from the doctor. I finally gave them a call Thursday and heard back on most of the bloodwork. Great news is that she is PERFECTLY HEALTHY. I mean, INSANELY healthy according to the doctor. Thanks to this food nazi's health and nutrition program she isn't deficient in any vitamins, minerals or nutrients. She tested negative for Celiac, her iron levels are great, immunoglobulins were all perfectly within the normal range and her thyroid function is normal as well. Thank you Jesus for a very healthy little girl!!!! While this is wonderful news it doesn't help to shed any light onto why her hair was falling out and why it may be so slow growing in. We should hear back from her allergy testing probably late next week and I don't really expect to be surprised with what we may learn from that. . She doesn't seem to have food sensitivities so I'd be shocked if that came back with anything and I think it's pretty obvious that she has seasonal allergies due to the reaction to the tree pollen over the past few weeks.

If the allergies don't reveal anything that can be a cause for this then we'll likely be referred to a pediatric dermatologist in Chapel Hill. If she is diagnosed with either or both LAS and/or SAS then we'll pretty much be done as there is no treatment for either syndrome. Well I should rephrase that, some parents do use rogaine on their children but that is simply not something that I'm comfortable even considering given the lack of research and the potential links between the use of rogaine and infertility.

Gluten intolerance is still something that I'm investigating and we're discussing removing it as a family as I think it could only benefit all of our health overall, but I'm just not ready to make the leap just yet.

Still holding out hope and saying many prayers that her sweet hair is just slow to grow, that the shedding was just a random one time thing and that I'll be laughing about what a psycho mom I was in a couple of years. But regardless thankful for my perfectly healthy and beautiful little girl.

December 2015
February 2016
March 2016
April 2016

Maybe I'm just fooling myself but I do feel like I see SOME progress.

"May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope." Romans 15:13


  1. I found this post as I was searching SAS (which I found through another post searching "my daughters hair won't grow"). We've been joking about her lack of hair growth over the years, but hoping it would anytime. But now she is almost 5 and it really hasn't so I've started looking into it more seriously (the docs weren't ever concerned). My daughter (hair) sounds (and looks) a lot like yours. I wasn't sure how old yours is, and how things are going since this post (I saw it was 2016). But I would love to chat/email a little if you ever want

    1. My daughter also has hair that won’t grow. She’s 3 and has hair like baby it’s never been cut and is only an inch long.