Saturday, April 2, 2016

A child's eyes

Yesterday was a completely draining day. Nicolette's appointment was at 8:00am and her pediatrician's office is about 20 minutes away so with kiddos that sleep until 7-7:30am it meant we were booking it to get there in time. It was a super gloomy, rainy day too so that made it doubly fun.

We made it on time and went through my concerns with the nurse and then again with the Dr. Showed her the vitamins that I currently have Nicolette taking and had her check out Nicolette's allergy eyes. She had a double eye infection AND a double ear infection. Poor munchkin. We talked through everything and they decided to test for the full Iron panel and Thyroid panel, fluoride in the system, celiac and environmental and food allergies. The nurse came back into the room and had Nicolette lie down on the table. They had her look up at me while I held her free arm down. I could NOT have been more proud of my girl. They had to take 4 vials of blood which is A LOT for a tiny little girl like her and she didn't cry when they stuck her and stayed nice and still the entire time. I wanted to cry I was so proud. She's such a tough little thing. They said we may start getting some results on Monday but that some results may take up to a couple of weeks to get back.

In the meantime I've been reading more and more about families who eliminate gluten (and many eliminate dairy as well) and see significant improvements. Even those who don't test positive for celiac seem to see a benefit to removing gluten from the diet. I read the book Wheat Belly a few years ago and do believe there is probably significant value to it and overall health benefit for all of us to eliminate gluten but yikes it's scary and overwhelming to go there. I shouldn't complain since I have several friends with children with SERIOUS allergies and they have no choice but to be vigilant and remove dairy and/or nuts and/or eggs from their diets. It's 100% do-able, I'll just be doing some more research while we wait for our test results.

In the meantime, the hair loss seems to have slowed. I've found no hair on the pillowcase since we started using the "Princess Pillowcase" (her new silk pillowcase) and she's not shedding anymore hair on my shirt or lap when she lays with me. I'm even noticing far less hair in the comb the past day and a half when I've combed her sweet hair. This has helped to ease my anxiety so so so much. With the amount that she lost on Sunday and Monday I had serious fears that she would be nearly bald within a few weeks. We took a walk to Target today and she rode in the stroller and I noticed her hair blowing in the breeze and she was laughing and giggling about it again, how amazing to have that joy. I want to be 3 years old again so that I can be so happy about the little things that we all take for granted as grown ups.

The pediatrician recommended that we wash her hair no more than once per week so I'll only be able to use our essential oils once a week now. The serum is just far too oily to use without washing out afterwards. She did recommend really conditioning her scalp well and I love that she recommended using coconut oil or even an avocado "mask" to condition it. I bought the Honest Company detangling conditioning spray to use daily on her hair. It contains coconut oil and argan oil and no harsh chemicals or endocrine disrupting chemicals so will hopefully help keep her scalp moist in between our weekly shampoo and conditioning treatment. The pediatrician also recommended having her eat some coconut oil and/or olive oil every day so I've started that too. 1tsp of each every day. I use a syringe for the olive oil and she eats the coconut oil off the spoon. She's not wild about it but has done it both days without throwing a major fit.

If the results come back without much information and she's still losing hair and not seeing growth then she said that we would need to see a Pediatric Dermatologist. The sad thing though is that she admitted that there really are not any Pediatric Dermatologists in the Charlotte Metro area with much notable experience in the area of children's hair and hair loss. She recommended that we look at doctors in the Chapel Hill area if that ends up being a route that we need to pursue.

Thank you so much for everyone who checked in on us and sent wishes and prayers for a good appointment. I'll definitely post again as we start getting updates on the tests. My ultimate hope and prayer is that she is 100% healthy and that her hair just starts growing naturally beautiful, long and thick all on it's own. That this is just delayed growth and that this crazy shedding and loss this week has just been the old making way for new healthy growth.

Thank you God for continued peace and strength and for allowing me to see the world through my daughter's eyes every now and then. How amazing this world would be if we all saw it through a child's eyes.


And how appropriate that my Facebook Memory from 4 years ago was this wonderful quote that is still so appropriate today:

"Joy is the settled assurance that God is in control of all the details of my life, the quiet confidence that ultimately everything is going to be alright, and the determined choice to praise God in every situation" - Kay Warren

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